Wednesday, December 13, 2006

A little about MS

...after all, this is supposed to be a blog about my 'MS Journey", isn't it?

So I saw the neurologist yesterday, for my semi-annual check-up. He ran me through a bunch of simple tests (memory, muscle strength, etc.) and pronounced me 'steady as a rock'. Yeah, right.

The thing is, I guess I am 'steady' in that I haven't deteriorated in the past six month, which is, I know, a Good Thing. But dammit, I want to IMPROVE, even though I know that's beyond less-than-likely, and it's hard for me to get excited because I know what city and county I'm living in or that the thing with the shiny, metallic band and round, glass-covered thing in the middle on the doctor's wrist is called a 'watch'. Cut me a break. The last IQ test I took clocked me in somewhere in the 150's - of COURSE I know what a watch is! But ask me how many words I lose every day, or whether I can walk more than a block or two before my legs are too clumsy to be trusted. Or whether I can stay awake for longer that five hours before I have to collapse in bed and sleep the afternoon away. Or whether I can hike. Or run. Or work.

Of course I know why he was so bubbly and positive throughout the examination - I haven't gotten perceptibly worse in the past six months, and that really is a very good thing. If I could only figure out how to relinquish my dreams of getting back to what used to be 'normal' and settle into what is now 'normal' without the fear that I'll give up entirely if I do that.

He also mentioned that one of the the liver enzymes they track in my every-six-month blood tests came back elevated (not a surprise, since three of the meds I take can negatively impact liver function), so he told me I now have to get monthly blood tests and (JUST BEFORE THE HOLIDAYS!) give up alcohol entirely. It's not like I drink all that much, either. I don't drink any hard liquor, haven't for years and years. But I do like a glass of wine with dinner, and several glasses if we're at a restaurant or hanging out with friends. But for now, and until my blood tests show a reduction in that enzyme, even my one glass of wine a day is verboten.

Yeah, I know. I could be in Fallujah, or Darfur instead of in beautiful Portland, OR. I have nothing to complain about, not when you look at the way the vast majority of human beings live on this planet of ours. But for today, just for now, I'm really bummed that I can't toast the holidays with anything stronger than a Diet Pepsi.

Poor pitiful me.

1 comment:

Revalani said...

Aw, sweetie. I feel your pain re: the celebratory toast (or two). But still: no deterioration is, as you say, a good thing. I'd suggest a wee dispensation w.r.t. Christmas Day and New Year's Eve, but I Am Not Your Doc. Dammit.